Patient Awareness and Approval for an Opt-Out Genomic Biorepository
Clayton, Ellen Wright
Brothers, Kyle B.
Westbrook, Matthew J.
Wright, M. Frances
Myers, John A.
Morrison, Daniel R.
Madison, Jennifer L.
Pulley, Jill M.
:
2013
Abstract
Aim: In this study, we sought to assess patient awareness and perceptions of an opt-out biorepository.
Materials & methods: We conducted exit interviews with adult patients and parents of pediatric patients having their blood drawn as part of their clinical care at Vanderbilt University Medical Center (TN, USA).
Results: 32.9% of all patients and parents of pediatric patients report having heard of the opt-out biorepository, while 92.4% approve of this research effort based on a brief description. Awareness that leftover blood could be used for research increased among adult patients during the study period, from 34.3 to 50.0%. Conclusion: These findings will inform ongoing assessments of the suitability of opt-out and opt-in methods as alternatives to written informed consent for inclusion in a biorepository.
Files in this item
- Name:
- Patient Awareness.pdf
- Size:
- 734.5Kb
- Format:
- Description:
- a study on patient awareness and ...